About TNA Australia

Our Association

TNA Australia is an ACNC Registered Charity (36 863 441 816).

TNA Australia was formed to provide support and encouragement to sufferers of Trigeminal Neuralgia and related facial pain.


OBJECTIVE
To provide information, support and encouragement to sufferers, their families and supporters.

MISSION
To promote awareness of TN and other facial pain among patients, families, the community and the medical and dental professionals who treat them.

GOAL
To encourage a unified understanding and improved approach to the treatments of TN and other related facial nerve pains at a national level and to improve treatments and approaches to pain management.

VISION
To improve the quality of life and treatment of chronic facial pain sufferers locally, nationally and internationally.

Our Story

The founding of Trigeminal Neuralgia Association Australia
by Irene Wood Founder of TNAA

My worst experience of pain was when a size 9 soccer boot met my shin. It was debilitating pain. I was carried off the field and the tears were freely flowing. So, when my mother described her pain, it was “okay so you have this electric shock zapping through” and left it at that. After all, pain was that tender purple and dark green patch on my shin, and like all pain it would eventually go away. I was busy living my own life and left the matters of my mother’s health to her doctors. Until, one day, I saw my mother wince in pain while tears rolled down her cheeks. I watched as she bravely tried to cope. I wondered to myself “how bad does this get?” I had no idea what she was suffering from and neither did she.

Her pain worsened and for months her food in semi-fluid were consumed through a straw. To avoid triggering an attack, the straw was carefully placed in the other side of her mouth. Each day she became more reluctant to leave her comfort zone, and sat in anticipation of her pain. Sleep was no longer an escape. She began waking up in the middle of the night screaming with pain. Her frustration in her helpless suffering was expressed by her “One minute I am in dire pain and then next minute I am fine. You must think I am mad or pretending and whining again.” Then when her pain became more dominant her misery was reflected in “ If I could die the pain would stop.”

Eventually I learned the name of the disorder and delved into the Internet and began learning about Trigeminal Neuralgia. Although by then my mother had undergone a radio frequency rhizotomy and was pain free, I could not shelve the information I had gained and pretend no one else needed it, for it was obvious that many were suffering helplessly like my mother, in isolation and in ignorance.



In June 2000, I registered with the Trigeminal Neuralgia Association in the USA to start a support group here in Sydney and began the slow road of contacting sufferers throughout Australia, in particular Sydney, New South Wales. I was passionate about sharing the information. I felt that with knowledge they would cope better. There was also the need to let others know that they were not alone with this strange pain. There was no need to suffer in silence. In February 2002, we felt the need to reach out nationally and that would be better served by a national organisation. Frank Martin worked tirelessly on the rules and constitutions and registered the association with the various bodies.

We were officially registered with Department of Fair Trading New South Wales as an incorporated body effective from 9 January 2003. As support groups were located in various other states it was necessary to register also with ASIC. This took effect on January 21st 2003. A special referendum was held in October 2003 and with more than 75% of the membership votes, appointed Irene Wood as a continuing President.

In keeping with the Association’s goal to have a unified understanding and an improved approach to the treatment of Trigeminal Neuralgia and other related facial pain, the association holds a biennial conference. We feel very blessed with the fantastic support we have enjoyed from local and international speakers over the years.

Our History

4 September 2000 Inaugural Sydney support group meeting held at Seven Hills
8 December 2001 Inaugural Melbourne support group meeting held at Ringwood Library
19 January 2002 Inaugural Brisbane support group meeting held at Kenmore Hills
February 2002 A decision was made that we would form a national TN organisation
September 2002 An invitation to the Western Australian group to unite with us was declined, citing distance as the reason and they chose to remain autonomous
9 January 2003 Registered with Fair Trading NSW as a national organisation
21 January 2003 Registered with ASIC – completes the Founding of TNA Australia
19 April 2003 Inaugural Newcastle /Hunter support group meeting held at Raymond Terrace
22 November 2003 Inaugural Canberra support group meeting held at Weston Creek
28 February 2004 Inaugural Sunshine Coast support group meeting held at Coolum Peregian RSL
October 2004 Thanks to Warren Ong, TNA Australia.org.au website was launched
4 December 2004 Inaugural Sydney CBD support group meeting held at St James Parish Hall
19-20 August 2005 1st National Conference at Bondi Beach
21 January 2006 Inaugural Coffs Harbour support group meeting held at Sawtell Uniting Church
18 February 2006 Inaugural Adelaide support group meeting held at The State Library Adelaide
18 March 2006 Inaugural Gold Coast support group meeting held at Palm Beach
7–8 September 2007 2nd National Conference at South Molle Island, QLD
27-29 August 2009 3rd National Conference in Yarra Valley, VIC
6 December 2009 Inaugural Hobart support group meeting held at a private home in Bellerive, Tasmania
19 June 2010 Inaugural Townsville support group meeting held in Pimlico
2–4 September 2011 4th National Conference in Hunter Valley, NSW
28 April 2012 Regional conference in Adelaide SA
23-25 August 2013 5th National Conference on the Gold Coast, QLD
14-16 August 2015 6th National Conference on the Gold Coast, QLD
June 2017 Irene Wood stepped down after 17 years of service.
24-26 August 2018 7th National Conference Coogee Beach, Sydney.
2020 Due to Covid 2020 conference was cancelled.

Meet the TNA Australia Committee

PRESIDENT
Kathy Meredith
ELECTED
2017
PROFESSIONAL BACKGROUND
22years NICU nursing, paediatric nursing, vaccine preventable & emerging disease surveillance since 2016
PASSIONATE ABOUT
Family, travel, music, gardening, animals, geography & cultures.

TREASURER
Angelo Trovato
ELECTED
2014
PROFESSIONAL BACKGROUND
Management Accounting and Administration
PASSIONATE ABOUT
Family, recycling, with TN Association support new members where I can

SECRETARY
Lynette Donnelly
ELECTED
2021
PROFESSIONAL BACKGROUND
30 years experience as a Systems Management Accountant
PASSIONATE ABOUT
Creating effective and efficient processes, my family and my veggie garden

WEBMASTER
Shane Thein
ELECTED
2018
PROFESSIONAL BACKGROUND
Electrical Engineer
PASSIONATE ABOUT
Spreading knowledge re TN, Exercise, Meditation, Healthy Living

COMMITTEE MEMBER
Peter Gough
ELECTED
2017
PROFESSIONAL BACKGROUND
Retired educator
PASSIONATE ABOUT
Supporting fellow TN sufferers, my local community, theatre, film, travel & social justice.

COMMITTEE MEMBER
Mary Milanovic
ELECTED
2015
PROFESSIONAL BACKGROUND
Wages Administration + Managing Family Business – now Retired
PASSIONATE ABOUT
Spreading knowledge re TN, My Family, Music & Living a full life.

COMMITTEE MEMBER
Tony MacPherson
ELECTED
2017
PROFESSIONAL BACKGROUND
Chemistry / Biochemistry, secondary and tertiary educator
PASSIONATE ABOUT
-helping people become as well as they possibly can be!
-my beautiful family and grandchildren
-travel adventures everywhere and at sea
-the arts: music, painting, theatre

COMMITTEE MEMBER
Nora English
ELECTED
2020
PROFESSIONAL BACKGROUND
Occupational Therapist
PASSIONATE ABOUT
-Making a positive difference to a person’s life and improving their wellbeing
-the awe and wonder of nature
-singing A Capella with Hot Ginger Chorus

Meet our Medical Advisory Board

DR. BENJAMIN JONKER

Dr Jonker is an Australian neurosurgeon with expertise in brain and pituitary tumours, as well as stereotactic and functional neurosurgery.

Ben has a particular interest in conditions treated with stereotactic and functional neurosurgery including trigeminal neuralgia, epilepsy, tremor and other movement disorders.

DR. MARK DEXTER

Dr Dexter provides neurological surgery for adults and children. His main clinical interests are cerebrovascular surgery, brain tumours and neuro-oncology, trigeminal neuralgia and surgery for epilepsy. He is the head of Neurosurgery at Westmead and the Director of Neurosurgery at SWAHS.

Public Hospitals: Westmead Hospital, Children’s Hospital at Westmead

Special Interest in Brain tumours, cerebrovascular surgery, epilepsy surgery

DR. JEREMY RUSSELL

Mr Jeremy Russell is an Australian trained neurosurgeon who manages all general neurosurgical conditions.

He has subspecialty expertise in both cerebrovascular and skull base neurosurgery, having obtained fellowships in both areas at the Toronto Western Hospital in Canada over a period of two years under world renowned neurosurgeons Prof Michael Tymianski and Prof Fred Gentili respectively.

Mr Russell uses the latest in imaging techniques, including Stealth Neuronavigation, functional MRI and cerebrovascular reactivity testing in formulating decisions for treating patient conditions and planning their surgeries.

PROF. ARUN AGGARWAL

Professor Arun Aggarwal is a highly experienced neurologist with expertise in chronic pain management, sport related head injuries and rebab.

Professor Aggarwal graduated from the University of Adelaide in 1987 and went on to specialise in neurology, rehabilitation medicine and pain medicine and is a Fellow of the Royal Australasian College of Physicians, the Australasian Faculty of Rehabilitation Medicine, and the Australasian Faculty of Pain Medicine.

He is a Clinical Associate Professor at the University of Sydney’s Medical School and currently oversees a number of research trials examining Parkinson’s disease, trigeminal neuralgia and chronic neuropathic pain. Arun’s exceptional levels of experience and ongoing involvement in research and investigation continue to be widely recognised with over 50 manuscripts in peer-reviewed journals.

Today, Arun sits on the editorial board of the Journal of Clinical Trials and Clinical Case Reports. He is the current Chairman of the ANZ Association of Neurologists Neuro-Rehabilitation Sub-Committee and on the Medical Advisory Board of Trigeminal Neuralgia Association.

DR. HELEN BOOCOCK

Dr Helen Boocock joined the Health Alliance in late 2020 and has worked in health service leadership including supporting the provision of high-quality healthcare for 30 years.

She is a recognised leader in the field of oral health and has a clinical background in dentistry (public and private), particularly chronic facial pain and tertiary education. Most of Helen’s recent roles have been executive and senior management roles within Queensland Health, where she was engaged in significant service redesign and reform. Most recently, Helen has been the Executive Director for Community and Oral Health with Metro South Health.

Helen has a particular interest in models of care, health pathways and health care reform.

Working with the Health Alliance in this leadership role, Helen aspires to understand and interpret the rapidly evolving health care landscape and to help build and improve healthcare pathways in Queensland between primary care and hospital services.

ASSOC. PROF. LIAM CAFFERY

Liam is an Associate Professor in Telehealth and Director of Telehealth Technology for the University of Queensland’s Centre for Online Health.

Liam has a PhD in Medicine. His research is centred on pragmatic trials of telehealth services. Liam has a special interest in the use of telehealth for Indigenous health and rural health care delivery. He is involved in telehealth service development, delivery and evaluation across a broad range of telehealth services. Liam uses implementation research principles to understand why telehealth services work well in some scenarios and not others. He evaluates the effectiveness of telehealth from multi-disciplinary perspectives including clinical effectiveness, patient perspectives, economic aspects, organisational aspects, and socio-cultural, ethical and legal aspects.

Liam is Vice-President of the Australian Telehealth Society and an executive member of the International Teledermatology Society. He is a member of the Metro South Health Telehealth Advisory Group and a member of the Queensland Health mHealth Apps Working Group.

Liam has 25 years industry experience as a health informatician. His immediate past role was the Manager of Medical Imaging Informatics at the Royal Brisbane and Women’s Hospital. Previously, Liam had over a decade’s clinical experience as a diagnostic radiographer.

ASSOC. PROF. ANDREW DANKS

Associate Professor Andrew Danks is an experienced and expert adult and paediatric neurosurgeon.

He trained in the Australasian training system, working in all major Victorian neurosurgical units before completing a doctorate by thesis in the field of brain tumour biology. He then completed a joint fellowship at The Brigham and Women’s Hospital in Boston and Boston Children’s Hospital in neuro-oncology and paediatric neurosurgery, with the development of an interest in movement disorder surgery.

A/Prof Danks has worked in public and private practice at Monash Medical Centre and Jessie McPherson Private Hospital for 23 years, and as the head of the neurosurgery unit there for 19 years. He is heavily involved in training and supervision of junior staff and has been an examiner for the FRACS in neurosurgery for the last 6 years. A/Prof Danks believes in an open and candid style of practice, where the proposed therapies are discussed at length, to allow patients to come to a joint decision with the surgeon. Some conditions may be better managed non-operatively rather than with surgery, whilst the two options might both be reasonable in other situations. In those situations where there is clear advantage to surgery, then this will be clearly recommended, explained and discussed to the level of detail required by the individual patient.

A/Prof Danks has considerable experience and expertise in brain tumour surgery and management, hydrocephalus and its surgical management, medical and surgical treatment for trigeminal neuralgia, Chiari malformations, and spinal dysraphism. Expert in the management of elective and emergency neurovascular conditions; and in the management of spinal disorders including cord compression, spinal tumours, radiculopathy, syringomyelia and degenerative spinal conditions. A/Prof Danks is expert in peripheral nerve disorders and their treatment and performs deep brain stimulation surgery for movement disorders