Gold Coast Support Group

Saturday April 2, 2022 1:30 PM AEST

The Meeting Rooms, Bungalows Residential Park, 325 Ready Creek Road, Burleigh Heads, QLD

Contact Peter Gough: 0414 233044

RSVP deadline is past

Gold Coast Support Group

Saturday February 5, 2022 1:30 PM AEST

The Meeting Rooms, Bungalows Residential Park, 325 Ready Creek Road, Burleigh Heads, QLD

Contact Peter Gough: 0414 233044

RSVP deadline is past

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Brisbane Support Group

The Brisbane Support Group met on December 11th and are seen here holding a banner created by Matthew Puls.

Matthew now lives on the Gold Coast but has previously lived in Melbourne and Brisbane, and attended both cities support groups.

Matthew has generously offered to help us light up Australia in Teal for International Trigeminal Neuralgia Day on October 7th

We have signed up sites in Brisbane, Gold Coast and Adelaide to date


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Deloitte Access Economics Report – The Cost of Pain in Australia

Sufferers of Trigeminal Neuralgia suffer chronic pain and very often treatment is made harder due to the  clinicians,  who treat the patient, do not always work collaboratively through the diagnostic and treatment process.

The Deloitte report is very interesting because it highlights the huge benefits from multi departmental care.

“Deloitte Access Economics was commissioned by Painaustralia to establish the local and Australia wide socioeconomic impact of pain, and to conduct a cost effectiveness analysis of health interventions that could reduce the impact of pain in Australia.

In this report, evidence has been presented to demonstrate the burden of chronic pain in Australia, including health system, productivity and carer costs, other financial costs and the loss of wellbeing.

The key findings include:

  • 3.24 million Australians were living with chronic pain in 2018. 53.8% are women and 68.3% are of working age
  • For the majority (56%) of Australians living with chronic pain, their pain restricts what activities they are able to undertake
  • The total financial cost of chronic pain in Australia in 2018 was estimated to be $73.2 billion, comprising $12.2 billion in health system costs, $48.3 billion in productivity losses, and $12.7 billion in other financial costs, such as informal care, aids and modifications and deadweight losses
  • People with chronic pain also experience a substantial reduction in their quality of life, valued at an additional $66.1 billion
  • The costs of chronic pain are expected to increase from $139.3 billion in 2018 to $215.6 billion by 2050 in real 2017-18 dollars
  • An extension of best practice care to Australian patients could lead to
    • substantial savings and better health outcomes.

    Published: April 2019″

The full report can be downloaded below – it is a long read but the index is extensive so users can hone into the areas that interest them


Deloitte have also provided a shorter presentation covering the key points

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Joint Consultation Study

Our organisation have links with medical and dental experts around the world, all working hard to diagnose, support and treat sufferers of Trigeminal Neuralgia.

We publish our newsletter to them and they reciprocate by providing new research, articles and advice for the benefit of our members

In November we were contacted by Prof Joanna Zakrzewska, having read our September Newsletter featuring pain and patient decision making, she shared with us some research around GP and Neurosurgeon joint consultations.

The research center’s around patients satisfaction by using a collaborative model of consultation

We are delighted to publish the research and we hope you find it interesting

The papers are titled below

Trigeminal Neuralgia Guidelines 2021 V4

Provided by

Professor Joanna M. Zakrzewska MD, FDSRCS, FFDRCSI, FFPMRCA
Consultant facial pain
Royal National ENT &Eastman Dental Hospitals

Floor 3, 179a Tottenham Court Road, London, W1T 7PA


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Barometric Pressure – Impacting Pain

When the Gold Coast Support Group met on Saturday 4th December for their Christmas Lunch, there was a lot of chat about the weather we had been experiencing November had been a very stormy month and the Coast had received a lot of rain.  Many of our members commented that the weather had really set […]
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