Support Groups

About TNA Australia Support Groups

Support Groups are the backbone of our organisation because they allow sufferers to meet and gain access to help and hope.

In 2000 the inaugural Support Group was formed in Sydney, prior to the incorporation of our organisation in 2003. The idea was offer to provide information, support and encouragement to people afflicted with trigeminal neuralgia and other facial pains, as well as to help their families and friends understand this medical disorder. Knowledge is power and understanding can be the greatest support.

In 2022 eight Support Groups affiliated with our organisation, are spread across South Australia, Tasmania, Victoria, New South Wales and Queensland. A Support Group once operated out of the ACT.  In the west a number of sufferers formed a separate incorporated body, Trigeminal Neuralgia Western Australia. Why eight groups?  Why not more?  If you don’t have a Support Group in your area what can you do to get one going?  Email Lyn Donnelly on  members@tnaaustralia.org.au express an interest, ask some questions and have a chat about Support Groups and all the possible options for you or another person to get one underway.

Eight areas of Australia have  a Support Group Leader who connects with the sufferers in their own geographic area. From time to time each Leader organises either a face-to-face or an online (Zoom) meeting in/from a central location and all sufferers, their carers and friends in that area or region are invited to attend.  Occasionally a specialist, in a medical or dental field that is relevant to trigeminal neuralgia, joins the meeting and shares his or her expertise and encourages questions. On other occasions, a video might be screened showing various treatments and surgeries.  Alternatively, sufferers might, one by one, share their memories about when their pain started, how they were diagnosed, and which treatments they have tried. On all occasions these meetings are very informal so that everyone can get the most out of them. And no-one is expected to speak if they are in pain or shy.  The meetings are safe places for learning, and sharing information.

In addition to running gatherings,  Support Group Leaders talk with sufferers and their carers by phone, communicate with text messages, via one-on-one online Zoom meetings and through email exchanges, depending on the circumstances and the needs of individuals.

The Objective of our Support Groups is to provide information, support and encouragement to sufferers, their families and supporters. Our Mission is to promote awareness of trigeminal neuralgia and other facial pain amongst patients, families, the community and the medical and dental professionals who treat them. Our Goal is to encourage a unified understanding and improved approach to treatments of Trigeminal Neuralgia and other facial nerve pains at a local, state and national level and to improve treatments and approaches to pain management. Our Vision is to improve the quality of life and treatment of chronic facial pain sufferers locally, nationally and internationally.

Admission to ALL support group meetings is FREE. A donation at the door is always appreciated.

If you haven’t made contact with a Support Group Leader, I recommend you check the list below and send an email or give one a call – for a phone chat to gather trigeminal neuralgia related information or to find out about a meeting. If there isn’t one in your area email Lyn Donnelly on members@tnaaustralia.org.au and talk with her about how one might be established somewhere around you.

“you are not alone”

Support Group Contacts

NATIONAL
Contact Person: Lyn Donnelly
Email: Members@tnaaustralia.org.au
Phone: 0414 771 587
ADELAIDE SUPPORT GROUP
Contact Person: Gay Roberts
Email: gaynorroberts19@gmail.com
Phone: 0413 191 268
BRISBANE SUPPORT GROUP
Contact Person: Tony MacPherson
Email: tonymacp@westnet.com.au
Phone: 0403 290 066
GOLD COAST SUPPORT GROUP
Contact Person: Peter Gough
Email: peter.gough1@gmail.com
Phone: 0414 233 0441
MACKAY SUPPORT GROUP
Contact Person: Vicki Brown
Email: brownfamily4@bigpond.com
Phone: 07 4956 3468
MELBOURNE SUPPORT GROUP
Contact Person: Emelye Lovell
Email: emelye.lovell@gmail.com
Phone: 0400 004 110
SYDNEY SUPPORT GROUP
Contact Person: Shane Thein
Email: shane.thein@gmail.com
Phone: 0407 106 470
TASMANIA
Contact Person: Dr. Helen Tyzack
Email: TassieTNFPGroup@gmail.com
Phone: 0459 022 883 
SUNSHINE COAST
Contact Person: Nora English
Email: noraenglish01@gmail.com 
Phone: 0418 495 776
LOCKYER VALLEY
Contact Person: Kim O’Donnell
Email: tnakimodonnell@outlook.com 

Upcoming Support Group Meetings

Due to Covid19 restrictions regular support group meetings may be cancelled or postponed please check with your support group leader to confirm the status of the meeting. Known cancellations have been removed from the Events list below.

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Tuesday November 29, 2022 7:00 PM AEST
 

Committee Meeting held via Zoom

Chair Lyn Donnelly

Committee

Helen Tyzack

Kathy Meredith

Nora English

Peter Gough

Angelo Trovato

Sarah Wilkinson

RSVP Now!

Event Types:

Posted by Lynette Donnelly on August 5, 2022

Saturday December 3, 2022 12:30 PM AEST
 

Christmas Event – TBA

Contact Peter Gough: 0414 233044

RSVP Now!

Event Types:

Posted by Lynette Donnelly on November 6, 2022

Saturday December 3, 2022 1:00 PM AEST
 

Come along to our Support Group Meetings at

Harrup Park Country Club, Juliet Street Mackay

Group Leader – Vicki Brown

RSVP Now!

Event Types:

Posted by Lynette Donnelly on March 11, 2022

Sunday December 4, 2022 1:30 PM AEST

Trinity Gardens Bowling Club, Albermarle St Trinity Gardens.

Join Us – Contact: Gay Roberts – 0413 191 268

RSVP Now!

Event Types:

Posted by Lynette Donnelly on August 27, 2022

Saturday December 10, 2022 10:00 AM AEDT to 12:00 PM AEDT
 

St James Parish Hall Level 1, 165 Phillips Street, Sydney, 2000

If unable to attend physically please still RSVP with a note to get Zoom Video Conferencing details emailed to you.

Cost: A gold coin donation is welcome.

Shane Thein: 0407 106 470

RSVP Now!

Posted by Shane Thein on January 13, 2022

Saturday December 10, 2022 1:30 PM AEDT
 

Maroondah Federation Estate, 32 Greenwood Avenue, Ringwood, 3134 – Meeting room 4

Cost: A gold coin donation is welcome.  Please bring a snack/plate to share if you can

Emelye Lovell: 0400 004 110

Alan Collard: 0408 936 231

RSVP Now!

Posted by Lynette Donnelly on December 16, 2021

Saturday December 10, 2022 1:30 PM AEST
 

30 Ridley Road, Bridgeman Downs QLD 4035, Australia

Join Us Contact: Tony MacPherson Tel: 0403 290 066

RSVP Now!

Posted by Lynette Donnelly on December 16, 2021

Monday December 12, 2022 7:00 PM AEDT
 

Monday 12th December at 7pm Eastern Summer Time (viewers in Queensland, South Australia, Western Australia and the Northern Territory please adjust for your time zone).

How to access? use the following link:

https://us02web.zoom.us/j/2034069450?pwd=dzl5UWNocFUzWm9SRXdnQmdkSnNVdz09

RSVP Now!

Event Types:

Posted by Lynette Donnelly on November 27, 2022

Thursday February 9, 2023 7:00 PM AEDT

Attendees Only

Peter Gough, Shane Thein, Helen Tyzack, Kim O’Donnell, Gay Roberts, Graham Boyer, Vicky Brown, Emelye Lovell, Tony MacPherson, Nora English,

Topic: SGL Quarterly Meeting
Time: Feb 8, 2023 07:00 PM Canberra, Melbourne, Sydney

Join Zoom Meeting
https://us02web.zoom.us/j/81687012305?pwd=c0NNSi81aXdxODNMSTgwbHRTK3J1Zz09

Meeting ID: 816 8701 2305
Passcode: 857855

RSVP Now!

Event Types:

Posted by Lynette Donnelly on November 5, 2022

Our mission is to provide support and encouragement to sufferers of Trigeminal Neuralgia and related facial pain. All material provided on the TNA Australia website is for information purposes only; to supplement a reader’s general knowledge.