The Melbourne support group meeting has been on ice since our wonderful Emelye Lovell stepped back from volunteering.
We have been actively looking for a volunteer to step forward to take on the role of face to face Support Group Leader for Melbourne.
We are delighted that Brenda Young has agreed to take over heading the meeting with support from Allan Collard.
I am hopeful that the Group will support Brenda with minute taking etc and that someone with computer skills will volunteer to assist her with the preparation of these minutes for issue to “head office” for inclusion in the regular Newsletters.
One way minutes can be collated easily, is if each member writes down their updates, perhaps by email or phone message so the minutes can be easily collated. Perhaps we can set up a webcam to record the meeting and the minutes can be easily collated.
Do have any technically skilled people who can assist Brenda with this?
The Melbourne face to face meetings are so important to our community – please help us ensure they are successful.
We will be looking to the members for some practical & moral support for Brenda in the Convenor role, and that she is prepared “to give it a go” in the hope that the Group can continue to function on an ongoing basis.
Our Association has been in continuous service for trigeminal neuralgia sufferers for 20 years, let us pull together to ensure we continue to deliver support to our Melbourne community.
Please use our contact form to offer assistance or suggestions.
The next meeting will be held on June 10th
Sometimes all we can do is be the supportive shoulder, the conduit to pass on education and provide an environment for support groups. When we hear of great outcomes, it is so rewarding for all of our volunteers.
Kay Morden passed on her appreciation which we are delighted to share
I “suffered” from TN for 15 years until I had an MVD December 2021. After diagnosis I am not sure what I would have done without the knowledge I gained and the support I received from TNA and my fellow Members (after attending one of the first Conferences in the Yarra Valley)
I live in Melbourne but I met Mark Dexter at another Conference on the Gold Coast and always thought if I ever decided to have a MVD (never dreaming I would) I would have Mark perform the operation. He had a wonderful caring approach and seemed so interested in TN.
It’s been 12 months and I am pain free and medication free- absolutely fantastic.
I will always support the TNA and anyone who would like to know of my long, individual TN journey and it’s successful outcome.
PS Tony MacPherson was a particularly wonderful support right through my “journey” and would speak to me for over an hour on many occasions if I was going through a “rough” period.
Perry Campbell also renewed his membership despite being pain free for now.
I did renew even though my Trigeminal Neuralgia has been corrected (completely gone), by way of a microvascular decompression craniotomy in Sept 22. A brilliant result by a brilliant team at RPA headed by the brilliant Prof. Brindha Shivalingum. Yahoo.
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