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Trigeminal neuralgia affects about 5 in every 100,000 people. It is more common in women than men and usually affects people between 50 and 70 years old.
Trigeminal neuralgia (TN) is a well-recognized cause of facial pain in the general population, although it is a relatively rare condition with a lifetime prevalence of up to 0.3%.
So In Australia that equates to 75,000 people thats three quarter capacity at the MCG.
The Australian Government does not fund any research into this condition, yet up to 75,000 people are left to cope with mis-diagnosis, dental trauma from teeth being removed unnecessarily, coping with a drug regime which is debilitating, and often cannot work.
We want to change the conversation, raise awareness and provide practical help for sufferers and support for carers.