Posted on Leave a comment

Factors that may affect recurrence of trigeminal neuralgia after percutaneous balloon compression

Most sufferers with trigeminal neuralgia have heard of the surgical treatment, Microvascular Decompression (MVD for short), but fewer know about percutaneous balloon compression.

I can speak from first-hand experience of both procedures, and of the success with the latter. That is, I remain pain and medication free after five and a half years since a simple and fast balloon compression procedure crushed my trigeminal nerve.  But I have always wondered and worried that the pain may return. To date I am extremely happy with the situation as are others I know who have undertaken this procedure.

The article ‘Factors that may affect recurrence of trigeminal neuralgia after percutaneous balloon compression’, was researched and written by Wenming Lv,  Wenjing Hu, Lingyi Chi, and Liangwen Zhang and published in Journal of Clinical Neuroscience Volume 99, May 2022, Pages 248-252, can be read here

If you are considering asking for a Balloon Compression procedure, be aware there are risks and side-effects and that your research should be thorough. You need to trust that your neurosurgeon has considerable experience with this procedure, and has informed you of all aspects.

One of the possible side-effects about which I was warned, was that I might have some or a lot of facial numbness on the affected side of my face.  I did have numbness on half an eyelid, half my nose and half the top of my upper lip. In the above article the finding was that numbness, on average, disappeared around three years.  That is about right for me, although on rare occasions in the past couple of years I have a sense of it in my upper lip and nose.  I am delighted to report that the numbness never caused my face to slump or change and has never been visible, it has always been mild, and it has never inconvenienced me.  Having said this, each person is different and the results for another could be dramatically different – so please gather all information from a knowledgeable professional if considering this.  For me, losing the pain and reliance on medication was worth some numbness. I was fortunate to be able to reclaim my life.

Helen Tyzack

Posted on

3.3 Balloon Compression Rhizotomy

FACIAL PAIN: A 21st CENTURY GUIDE For People with Trigeminal Neuralgia Neuropathic Pain 3.3 Balloon Compression Rhizotomy By Jeffrey A. Brown, MD, Neurosurgeon, NY University – Long Island School of Medicine Balloon compression rhizotomy, first conceived by Dr. Sean F. Mullan and Dr. Jeffrey A. Brown, is a simple and effective outpatient treatment for TN. […]
To access this post, you must purchase TNA Australia Full Member.
Posted on Leave a comment

A research on quality of life score (QOLS) of patients with trigeminal neuralgia

WordPress database error: [Unknown column 'rsvpdates.date' in 'where clause']
SELECT DISTINCT wpfn_posts.* FROM wpfn_posts WHERE 1=1 AND wpfn_posts.ID = 2575 AND wpfn_posts.post_type = 'dlm_download' AND ( ( rsvpdates.date > '2022-09-26' OR rsvpdates.enddate > '2022-09-26' ) ) GROUP BY wpfn_posts.ID ORDER BY wpfn_posts.post_date DESC

A research on quality of life score (QOLS) of patients with trigeminal neuralgia

When I visit my medical professionals they always ask questions in order to be sure of the diagnosis, and to be sure the treatment they recommend is appropriate to me personally.

I have discovered the following article which may interest you.

While it contains scientific language and in parts may be difficult to work through, you can read at the end before the list of references, a list of questions with the words for a five point rating system. There are some questions on that list that I am going to remember so when I visit my GP or Neurologist or Neurosurgeon I need to provide the answers, even if not asked – because I believe it may make a difference and help them help me.  Perhaps you might feel this way.

The article, ‘A research on quality of life score (QOLS) of patients with trigeminal neuralgia (TN)’ written by Yejiao Luo, Mingjie He, Chenjun Li, and Hongya Yang and published in the

Journal of infection and Public Health Vol. 12 Issue 5  September–October 2019, Pages 690-694,

[Download not found]

Article by Helen Tyzack

Posted on Leave a comment

Anxiety in People with Trigeminal Neuralgia and other Facial Pain

WordPress database error: [Unknown column 'rsvpdates.date' in 'where clause']
SELECT DISTINCT wpfn_posts.* FROM wpfn_posts WHERE 1=1 AND wpfn_posts.post_name = '684fe1029d0dc1f66a8288110b65de4e' AND wpfn_posts.post_type = 'oembed_cache' AND ((wpfn_posts.post_status = 'publish')) AND ( ( rsvpdates.date > '2022-09-26' OR rsvpdates.enddate > '2022-09-26' ) ) GROUP BY wpfn_posts.ID ORDER BY wpfn_posts.post_date DESC

Many of our sufferers experience extreme anxiety, even when they have undergone successful surgery.  The fear that the pain can come back at any moment can paralyse sufferers and prevent them leading a fulfilling life

We work closely with the Facial Pain Association in the USA who have some wonderful resources – this webinar really helps understand where the fear comes from, how to understand the process and how it can be mitigated

Dr. Leesa Scott-Morrow will discuss anxiety in people with facial pain. This webinar will introduce the brain mechanisms that are involved in the experience of fear and anxiety, including discussion of why these mechanisms interfere with concentration and mental clarity.

There are many types of anxiety.

Dr. Scott-Morrow will discuss the various types and the way treatment may, or may not, differ for each type. Past trauma can leave a person with increased risk for anxiety. The webinar will include some discussion of this problem and discussion of risks and benefits of the various medications that are used to treat anxiety.

In addition, Dr. Scott-Morrow will include discussion about the way in which use of alcohol can become problematic in anxious people.

Posted on

AGM Meeting – 2022

It certainly has been a busy year for the committee, with big steps taken to improve our digital platform in order to support sufferers where ever they are Our AGM Meeting will be held on Saturday 4th June as 10am Sydney time.  For members who would like to attend the meeting in person the address […]
To access this post, you must purchase TNA Australia Full Member.
Posted on Leave a comment

Predictive Value of Magnetic Resonance Imaging

WordPress database error: [Unknown column 'rsvpdates.date' in 'where clause']
SELECT DISTINCT wpfn_posts.* FROM wpfn_posts WHERE 1=1 AND wpfn_posts.ID = 2407 AND wpfn_posts.post_type = 'dlm_download' AND ( ( rsvpdates.date > '2022-09-26' OR rsvpdates.enddate > '2022-09-26' ) ) GROUP BY wpfn_posts.ID ORDER BY wpfn_posts.post_date DESC

Many have been through a magnetic resonance imaging (MRI) process. The intention has been to see whether a blood vessel is resting/pumping on the trigeminal nerve. This is not a diagnostic tool because some people can have this situation and never feel pain or discomfort on the trigeminal nerve. In some cases, a blood vessel does not appear to be touching the nerve yet some people feel pain. The MRI is simply part of a broad information gathering process.

The following research paper, using specific medical language which may make reading a challenge, may be of interest because it examines the usefulness of MRIs.

Titled Predictive value of magnetic resonance imaging for identifying neurovascular compressions in trigeminal neuralgia, this research was published in the journal Neurología (English Edition) Volume 34, Issue 8, October 2019, Pages 510-519.

[Download not found]
Posted on

How to Prepare When Seeking an Orofacial Pain Diagnosis

The Facial Pain Association FPA held a two day conference in January 2022 They had many excellent presentations and one of those was by Dr Gary Klasser, the details of his background is below Specialities and Expertise Dentistry, Orofacial Pain, Temporomandibular Disorders Affiliations Professor, Division of Diagnostic Sciences Louisiana State University School of Dentistry Education […]
To access this post, you must purchase TNA Australia Full Member.
Posted on

2.3 Botox

FACIAL PAIN: A 21st CENTURY GUIDE For People with Trigeminal Neuralgia Neuropathic Pain 2.3 Botox by Ramesh P. Babu, MD Botulinum toxin is one of the most poisonous biologic substances known to humans. What makes botulinum toxin type A (Botox) safe for use? Even though botulinum toxin is known for its toxicity, administered by well-trained […]
To access this post, you must purchase TNA Australia Full Member.
Posted on Leave a comment

Trigeminal Neuralgia – Chronic Pain Meditation

WordPress database error: [Unknown column 'rsvpdates.date' in 'where clause']
SELECT DISTINCT wpfn_posts.* FROM wpfn_posts WHERE 1=1 AND wpfn_posts.post_name = 'c509a82c1c6e6086679e0f59e1b53dce' AND wpfn_posts.post_type = 'oembed_cache' AND ((wpfn_posts.post_status = 'publish')) AND ( ( rsvpdates.date > '2022-09-26' OR rsvpdates.enddate > '2022-09-26' ) ) GROUP BY wpfn_posts.ID ORDER BY wpfn_posts.post_date DESC

As a Trigeminal Neuralgia sufferer have you though about using Chronic Pain Meditation

When a Trigeminal Neuralgia sufferer experiences pain flares which are hard to deal with,  it may be worthwhile taking some time for yourself and using a meditation tool to help reduce anxiety and stress and hopefully will also result in a  reduction in the pain felt.  It is so important to use a holistic approach to chronic pain

“This meditation for chronic pain uses relaxation, breathing exercises and guided imagery with one goal in mind, to produce your body’s natural relaxation response to counteract the effects of stress and reduce pain. Relaxation techniques are safe for anybody to use and do not have the side effects of pain medication.”

Any opinion expressed or information provided in/with this email is not a substitute for medical advice.  Always contact your doctor or other medical professional if you have a question concerning your or another’s health.

 

Posted on

Tasmania – Support Group Update

Report from Tasmanian Support Group Leader –February 2022 On a 2020 statewide survey, only one Tasmanian sufferer or their friends or relatives, wanted a sit down get together meeting and only one other wanted a Zoom meeting. Instead the survey and subsequent correspondence indicated people wanted information and occasional personalised phone support. While Tasmania has […]
To access this post, you must purchase TNA Australia Full Member.