Tag: Light Up In Teal

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International Trigeminal Neuralgia Awareness Day – Light Up In Teal 2023

The year of 2023 is a very special year for the Association – our charity is 20 years old and we would like to mark it by participating in International Trigeminal Neuralgia Awareness Day in a big way.

The association is run by a small band of volunteers and although we would like to do so much to celebrate this amazing milestone, we need people to lend a hand.

It would be a stunning achievement if we could better the 11 cities, we partnered with in 2022, to celebrate International Trigeminal Neuralgia Awareness Day on October 7th 2023.

This initiative is to ask for help from you, our members, families and associates.  We have put together a Council Request and Press release Document.  Do you have time to download the form and send to your local council.   Some councils have an online portal where you can just upload the document.  Imagine if hundreds of people gave the Association 30 minutes of their time to put in a request to their city……

Light Up In Teal Request 2023 (pdf)

Light Up In Teal Request 2023 (doc)

How stunning it would be If we were able to get sufferers represented all around Australia with our Teal Beacon of Hope lighting up Bridges, Buildings or other Landmarks.

If you can help – the process is as follows

  1. Download the document either as a PDF or as a Word Document
  2. Go onto your cities webpage and find the Contact Us area
    1. If the portal allows you to upload a document – fill in your details and upload the request document
    2. If the portal requires you to enter a reason rather than a document upload – copy/paste the text of page 1 of the document into the portal
  3. You will receive an initial confirmation email – please forward the email to marketing@tnaaustralia.org.au
  4. When you receive an approval or a decline response – please forward the email to marketing@tnaaustralia.org.au
  5. The team here at the association will then publish details of your help and which cities have agreed to partner with us.

Let us see if together, we can achieve remarkable things

 

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President’s Monthly Musings – Oct 7th 2022 Light Up In Teal

International Trigeminal Neuralgia Awareness Day October 7th Light Up In Teal

I am humbled by the turn out of our members and stakeholders, who took photos of the landmarks which were Lit up in Teal all around Australia.  Our Association members and Facebook members of the two groups below, made sure we had photos of the Eastern Coast sites.

Trigeminal Neuralgia Association Australia | Facebook

Trigeminal Neuralgia – Australia/New Zealand * | Groups | Facebook

We would also like to extend our heartfelt gratitude to Julia McDonald – the Secretary of the Trigeminal Neuralgia Western Australia, who organised photographers for the sites in Albany, Perth, Geraldton and Broom

Trigeminal Neuralgia Support Group – Strength Through Shared Experience (trigeminalneuralgiawa.com.au)

We had a few minor issues – unfortunately Albany City Centre was not lit up, and The Glasshouse, in Port Macquarie lit up during the day which was not the agreement.  Broome Water Tower lit up in a fetching red colour, however – with the magic of desktop design apps we changed the colour to blue.

Despite the difficulties, we created a buzz.  Sufferers of Trigeminal Neuralgia could see a beacon of hope highlighting some magnificent buildings.  We know that the Teal Light provided support and a feeling of community to all sufferers.

I would like to thank Helen Tyzack our Vice President – who wrote the media releases and contacted media outlets all around the country, liaising with sufferers in each location to personalise their stories.

Townsville Bulletin wrote up a story about Haley Plaza in Townsville.

Haley Plaza

 

 

 

 

MYGC here on the Gold Coast also published a story about our event

Gold Coast “Light Up In Teal” – myGC.com.au

I would like to thank our newest committee member Sarah Wilkinson, who created advertising posters for the facebook group pages to highlight the buildings to be Lit up in Teal.  The posters allowed our sufferers to attach their pictures if they wished, to those posts.  She and her husband Samuel, braved the pouring rain in Newcastle, and took some wonderful pictures of the Town Hall Clock

I would also like to thank our wonderful Support Group Leaders who took photos or arranged for photos to be taken.  We cannot function without you highlighting our activities at each Support Group Meeting

I will be providing slides to Toni Saunders the founder of the Light Up In Teal Awareness Day

2022 Light Up Teal 4TN – TNNME: TRIGEMINAL NEURALGIA and ME

I have put together a little video with the pictures we have received and there are a few more to be added.  I am still working on the file – but hopefully you will enjoy what we have put together so far.

 Trigeminal Neuralgia International Awareness Day October 7th 2022

Our Association will also send a slide to each City Council who participated and an email showing our gratitude for supporting us all.