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Self Management Navigator Tool – a guide to questions that may need answering

The painconcern.org.uk have developed a self help sheet to help pain sufferers navigate the questions that you may want to ask during medical appointments This innovation has been trialled in the UK but the factors involved are universal You can download the form from the article below, this is a free resource Self-Management Navigator Tool

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A Matter of Interpretation

Active listen is a skill,  but there are times when even the best of us, can misinterpret what they have heard. The below article was published by By Carol Levy, PNN Columnist in Aug 2021 I recently read a post in one of the online chronic pain support groups. “Sue” had just left an appointment […]

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Chronic Pain – No Longer Normal

Any one living with chronic pain tries to live a normal life.   That idea is really quite absurd because when you are living a life evaluating what you can or can’t do every moment of the day…..clearly you you are not going to fit in the “normal” box This article was written by By Carol […]

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Chronic Pain Infographic

Many of our learnt reactions have been created from previous experiences, and our brains then program us how to behave.  However we can reprogram our thoughts and reactions with a bit of brain training Targeted Rewiring The process of rewiring the neural pathways of chronic pain requires experimentation, patience, and consistency. Science-backed techniques, like those […]

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Vitamin D Deficiency Linked to Chronic Inflammation

We are always interested in research which can show what conditions may cause chronic inflammation Australian Center for Precision Health, University of South Australia Cancer Research Institute, Adelaide, Australia, 2 South Australian Health and Medical Research Institute, Adelaide, Australia and 3 Population, Policy and Practice, UCL Institute of Child Health, London, UK *Corresponding author. Australian […]

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Denise Drysdale talks about her Diagnosis with Trigeminal Neuralgia

We are delighted that Denise Drysdale is raising awareness, by talking about her Diagnosis with Trigeminal Neuralgia. It is also wonderful to hear that she underwent surgery with Dr Ben Jonker who is one of our Medical Advisory Board Neurosurgeons The article below was written for Woman’s Day EXCLUSIVE: Aussie TV treasure Denise Drysdale opens […]

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TN Acute Management Handout

Associate Professor Arun Arggarwal presented at our recent Webinar  around Acute Pain Management for sufferers of Trigeminal Neuralgia,  and has kindly provided the slide presentation of the subjects he covererd We are making the slides available now – however we will be publishing the webinar where A/Prof Arun Aggarwal provides a great commentary and explanation […]

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Epilepsy and osteoporosis risk Philip M Dussault et al. Curr Opin Endocrinol Diabetes Obes. 2017 Dec.

It is important that all sufferers who are using anti-convulsant medication for their Trigeminal Neuralgia, and have used this medication for longer than 36 months,   consult their doctor about monitoring  Bone Density and have a review and prevention plan in place There have been many studies highlighting the link between anti-convulsant medication and osteoporosis Below […]

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Presentation by Karen Smith – Her experiences living with Chronic Pain

Karen Smith advocates for chronic pain sufferers in Canada, and shares her personal story in this presentation. In this video she describes the impact on her, from other peoples reaction to her, when she discloses she lives with chronic pain.  In her case she suffers from a debilitating back injury, but I think her observations […]

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What Patients Need To Know About the Differential Diagnosis Of Facial Pain

The Facial Pain Organisation has released the next presentation from the Conference held in January 2022 The presentation is by Dr Donald Nixdorf and is packed with really useful tips how to communicate with your care providers, and some of the issues that are encountered not only from the patients perspective, but from the clinicians […]

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Webinar – Prof Arun Aggarwal

Webinar News – Save the Date We are delighted to announce the details for our next webinar – Presentation by Prof Arun Aggarwal – When Trigeminal Neuralgia Pain is too much : Presenting at the Emergency Department for Pain Management Professor Arun Aggarwal is a highly experienced neurologist with expertise in chronic pain management, sport […]

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How to Handle Facial Pain in Public

Coping with pain in public is a subject that our sufferers deal with constantly The Facial Pain Association has great resources and publish regular articles.   The following article was published by them in  Aril 2021 and  provides great coping tips  How to Handle Facial Pain in Public Published April 13, 2021 by the FPA Facial pain […]

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A Personal Story – Living with Trigeminal Neuralgia

It is so important we hear from people who suffer from Trigeminal Neuralgia who are willing to share their personal stories I came across this story in twitter, written by David Flint with a career and all the usual distractions of daily life https://reprobatepress.com/2022/06/21/the-suicide-disease-the-personal-horrors-of-trigeminal-neuralgia/          

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Chronic Pain – Learning to Pace

We are all very different in the way that we individually tackle chronic pain, and the effect that has on all aspects of life. This article was written for the invisiblyme.com website and it contains great insight on working to create a better way to live with chronic pain   4 Things To Remember When […]

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FPA – Medical Causes of Facial Pain

The FPA held a two day video conference in January 2022 The organisation is now releasing the videos for sufferers who did not attend, and other organisations working with sufferers of Trigeminal Neuralgia and other Facial Pain Dr  Hossein Ansari presented a very detailed analysis for the reasons and conditions which cause Facial Pain.  During […]

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Anxiety in People with Trigeminal Neuralgia and other Facial Pain

Many of our sufferers experience extreme anxiety, even when they have undergone successful surgery.  The fear that the pain can come back at any moment can paralyse sufferers and prevent them leading a fulfilling life We work closely with the Facial Pain Association in the USA who have some wonderful resources – this webinar really […]

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TNA Australia Webinar – Dr Ben Jonker

TNA Australia are delighted to provide the recording of Dr Ben Jonker’s presentation covering “Which Procedure Should I Have For Trigeminal Neuralgia” The Association has committed to create four educational webinars a year and we are delighted the members of our Medical Board are providing their expertise to help all sufferers of Trigeminal Neuralgia navigate […]

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Donations End of Financial Year Gift

We have been delighted to receive a number of big donations this month.  It got us a bit curious what could be driving these wonderful gifts, which will make a huge difference to the services we can provide So thanks to google I did a search and found the attached info. Whatever the reason, every […]

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Nerve Combing – Dr Jeremy Russell

Early in 2022, a member of the TNAA Medical Advisory Board, Melbourne based Dr Jeremy Russell offered a webinar to Tasmanian TN sufferers. During his presentation he explained how he had conducted some ‘combing’ of the trigeminal nerve as a treatment to stop pain.This 2000 article addresses a few matters associated with nerve combing.

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Support Network Animated Design

We have been granted a free subscription from the team at Canva due to our Charity Status So we tapped into our design brains and created an animation which shows what we do. We hope you like it https://www.canva.com/design/DAE_PDWPS9k/1knIB5_5-93y95pV-WVkGA/watch?utm_content=DAE_PDWPS9k&utm_campaign=designshare&utm_medium=link&utm_source=publishshareli  

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