Latest News and Articles

Our Annual General Meeting will be held online on Saturday 1st April at 10.30am for Tasmania, Vic, ACT and NSW time; please adjust this time if you live in another state or territory – please check. It is important to note a member can only vote if they are a current financial member.  You are […]

The last few years has seen some movement in thinking and research on whether medical cannabis and chronic pain management can work together.   However the  Australian Federal governments last update on the subject was in 2017 Medical Cannabis has been widely accepted by the medical professions in America however the subject is highly politicised and […]

Mental health management is a key part of your care plan when dealing with chronic pain and the ensuring you achieve the best quality of life available. Mental health is now recognised as a contributor to how badly pain can effect you.  Following a good management program will assist you in coping with bad days […]

Noema Pharma announces completion of enrollment in the Trigeminal Neuralgia Electronic Diary (TNED) validation study Study to validate the novel Patient-Reported Electronic Diary designed to more efficiently and accurately measure disease burden associated with trigeminal neuralgia LIBRATN (NOE-101 Phase 2/3 study in Trigeminal Neuralgia) is on track to report top-line data in H1 2024 BASEL, […]

Last year 2022, we created a members survey in order for our Association to better understand what opinions our membership held, regarding the support we offer. We gratefully acknowledge all of the responders who took the time to complete the survey and your views help us to create,  design and offer future support programs. The […]

Our Association receives donations from well-wishers and members, so how do we utilise your donation generosity? When we launched our new website back in November 2021, we had 134 members in the Association. The original membership previously ran from January to December and renewals were due in the first week of January. New members after […]

This month has been a big one in our household.  Patrick’s pain on both sides of his face is back with a vengeance.  The gamma knife treatment he had back in 2021 had kept the pain at bay but now it is back. We all know how debilitating this awful condition is, and the utter […]

The year of 2023 is a very special year for the Association – our charity is 20 years old and we would like to mark it by participating in International Trigeminal Neuralgia Awareness Day in a big way. The association is run by a small band of volunteers and although we would like to do […]

Nerita Lewis had her life planned out with so much to look forward to in her career within the Australian Air Force.  Then she was forced to accept a new normal. Undaunted, Nerita is determined to help other veterans living with chronic pain. Read more about her advocacy  .      

Sufferers of trigeminal neuralgia know they are dealing with a rare disease.  Medical professionals rarely come across a patient with TN in their whole careers.   Diagnosis is difficult to obtain and the lack of neurologists, especially in Australia’s regional area, exasperate the isolation and despair for patients. Every year the International Community come together to […]

Sometimes all we can do is be the supportive shoulder, the conduit to pass on education and provide an environment for support groups.  When we hear of  great outcomes, it is so rewarding for all of our volunteers. Kay Morden passed on her appreciation which we are delighted to share  I “suffered”  from TN for […]

Thinking and Depression: Changing Negative Thought Patterns By Wesley Buch, Ph.D., R. Psych. Pain and the problems associated with pain – sleep disturbance, limitations, losses, conflict, and stressful circumstances – can all negatively affect how you think about yourself, others, and your world. Negative thinking can contribute to depressive feelings. Life Events (injury/pain) —> Thoughts, […]

It is the last day of January 2023 and the month has rushed by.  I hope you have all enjoyed a wonderful break over Christmas and New Year and have recharged your batteries. January is the month when many of our pre new website members will be renewing their memberships.  If your membership has lapsed […]

It is Christmas – when the world takes on a loving glow and everyone is excitedly looking forward to parties, carol singing, roaming around lit up streets, gathering with family and friends, eating too many chocolates, and generally eating too much all together…… Except that isn’t the case for many of our members who are […]

Our Vice President and Tasmania support group leader, Helen Tyzack, updated her group about neuromodulation for trigeminal neuralgia back in 2021.  She has provided the information she gathered, and we hope it may provide education and understanding about this treatment Neuromodulation. In italics below I have added the contents of emails I previously sent to […]

One of our members has written an article which describes how he feels about the impact that trigeminal neuralgia has on him. Frozen in fear. Waiting…by Julian Whittaker All is fine in your world, as if Trigeminal Neuralgia was a myth. The day is going well, but in the back of your mind you know […]

People with invisible disabilities like me are routinely disbelieved — and it can have long-lasting effects. 4.5 million Australians live with conditions which are invisible to the casual observer.  Our community who deal with the pain of trigeminal neuralgia are well aware of this. As a society we still suffer from the stereotype belief that […]

It has been a busy month again and I cannot express how proud I am of our community.  So much progress has been achieved in the last year and I feel it is appropriate to spend some time and reflect on just how far we have all come.  We are heading into the Christmas season […]

This video provides a wonderful visual depiction of a personal interpretation of acceptance of chronic pain created by Professor Tamar Pincus. Tamar Pincus is a Professor in Health Psychology at The University of Southampton, where she is also Dean of the faculty of the environment and life sciences. Until 2022 she was a Professor and […]

So what is MLS Treatment Therapy, and how can it help sufferers of trigeminal neuralgia? What is a Multi Wave Locked System? The Multiwave Locked System (MLS®) is a new patented LLLT system that combines 905nm pulsed emissions with 808nm continuous emissions.I It was developed by ASA Laser to help overcome some of the limitations […]