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Webinar with Dr Jeremy Russell – Trigeminal Neuralgia and similar neuralgias. What can you do?

We are delighted to announce our final webinar for 2022 with Dr Jeremy Russell who is on our associations medical advisory board.

Dr Russell has donated a great deal of his time and we are grateful for the information he provides to our support group network and individual members.

The webinar will be recorded, and made available in due course.  I do urge our membership to add the details of the webinar to their calendars and join live, to have your chance to ask questions through the chat.

Monday 12th December at 7pm Eastern Summer Time (viewers in Queensland, South Australia, Western Australia and the Northern Territory please adjust for your time zone).

Topic: Trigeminal Neuralgia and similar neuralgias. What can you do?

 How to access? To click on the online link for this presentation go to our Facebook or Twitter accounts. Alternatively use the following: https://us02web.zoom.us/j/2034069450?pwd=dzl5UWNocFUzWm9SRXdnQmdkSnNVdz09

 

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Paracetamol Medication Availability

Our chronic pain sufferers have enough to deal with managing their medical condition.
This proposal if it goes ahead as outlined will seriously impact the availability of safe pain killers relied on by so many.
All chronic pain suffers need to be made aware and raise our voices how these proposals may impact them
A proposal to restrict the sale of paracetamol products like Panadol is likely “scaring” the millions of Australians who rely on these products to get through their daily lives, according to one advocacy group.

A committee of the Therapeutic Goods Administration (TGA) met on Wednesday to consider feedback from public consultation on limiting the sale of

products.

 

https://www.sbs.com.au/news/article/the-sale-of-paracetamol-could-soon-be-restricted-this-is-scaring-chronic-pain-sufferers/yyfwspexa

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Catastrophizing – how to stop making yourself depressed

It is easy when you are coping with chronic pain to see the worst scenarios in everything around you.

Your mind sets off on a flight of fancy and before you know it, the sky has fallen and all hope is gone.

Mental responses can be retrained to reduce the impact on mental health and quality of life.  Learn how to recognised the signs.

Emma McAdam is a licenced marriage and family therapist who uses her therapy skills and psychological research to create bite sized nuggets of help.

You can access her full library here with many short videos which may help you cope.

 

– YouTube Emma McAdam – Therapy in a Nutshell

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Pain and me – Tamar Pincus

This video provides a wonderful visual depiction of a personal interpretation of acceptance of chronic pain created by Professor Tamar Pincus.

Tamar Pincus is a Professor in Health Psychology at The University of Southampton, where she is also Dean of the faculty of the environment and life sciences. Until 2022 she was a Professor and Executive Dean at Royal Holloway, University of London. She has led the Research Centre for the study of Pain and Well-Being at Royal Holloway. Her research spans experiment approaches to explore psychological mechanisms in pain, observation studies to measure risk over time, trials to test effectiveness, and qualitative work, to examine the thoughts and beliefs of people living with pain and those who are part of their life. Examples include investigations of cognitive biases in people living with pain; the psychological predictors for poor outcome in low back pain, and the study of clinicians’ beliefs and behaviours and their effect on patients with pain, especially in reference to effective reassurance and return to work.

 

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Biopsychosocial Model and Occupational Therapy

Pete Moore runs the Pain Toolkit organisation in the UK and talks in this session about biopsychosocial occupational therapy.

This conversation is  with Bronnie Thompson, who is an occupational therapist.  Bronnie talks about how an OT can help a person dealing with chronic pain, manage their day to to day lives, incorporating psychology and physiotherapy and pain management.

It is an important issue which often gets overlooked.

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The Dialectic of Pain: Synthesizing Acceptance and change

Dr. Deborah Barrett offers a framework and tools to help people improve their quality of life, just as they are, while also reducing pain and suffering. Her work draws from empirically based cognitive and behavioral interventions, and she practices what she preaches every day.

We thank the FPA for the great work they are doing publishing webinars in this field.

Watch the webinar here

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How to Support a Partner with Chronic Pain

The question is often raised at our support group meetings – how can I support my partner with chronic pain.  It is so hard to watch someone you love cope every day with debilitating pain.

Oh if only you had a magic wand.  How many of us go to bed thinking, “maybe tomorrow they will wake up and the pain will be gone”.

Oh course always have hope, but while we wait for a miracle or a treatment that works for our partners particular circumstances, what can we do?

Supporting a partner or loved one with chronic pain is difficult. Whether you’re having to cope with the transition from being pain free, or entering into a relationship with someone suffering from an existing condition, you’re still going to have to learn a whole new set of skills if you’re going to make the best out of what can at times be a difficult situation.

15 Ways To Support A Partner With Chronic Pain

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How to Exercise with Chronic Pain

Recent research has found that 50% of Australians are living with a disability.

Let that sink in……1 in every 2 people are coping with some sort of disability….

Sufferers of trigeminal neuralgia are very well aware that they are coping with a condition that is not visible to many others.  It must come as a shock to see stats that so many people in our society are dealing with illness.

So what can we all do to protect ourselves and help us live life to the fullest

The below link is part of information to support the ABCs Your Move series of programs

https://www.abc.net.au/everyday/experts-on-how-to-exercise-with-chronic-pain/101534976