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New Support Group Meeting – Lockyer Valley

Lockyer Valley Inaugural Support Group Meeting

We are delighted to announce that we are launching a new online Support Group Meeting in the Lockyer Valley area.  Our new Support Group Leader is Kim O’Donnell – you can read her story here.

Kim has a background in counselling, helps run her family business and deals with the day-to-day challenges of living with and managing Trigeminal Neuralgia.  Kim has worked through the Training Modules created by our Association to support our volunteers who are providing assistance, empathy, advocacy and education within the safety of a Support Group Meeting.

The changes imposed on us all through the two lockdown covid years, has taught us we do not necessarily need to be face to face in the physical world, to support sufferers.  We are utilising technology to enable our sufferers in Regional Areas to be able to connect and feel safe in our online space using the zoom platform and to feel part of our growing community.

The first meeting will be held on October 11th at 10.30am, a few days after our International Trigeminal Neuralgia Awareness Day on October 7th when we are lighting up cities around Australia in Teal.  In Brisbane the Victoria Bridge will be lit up on the eve of our day on Oct 6th and on the 7th the Gateway Bridges will look magnificent in Teal.  We had also put in a request to the City of Toowoomba but have not yet received a response.

If you are a Trigeminal Neuralgia Sufferer and live in the Lockyer Valley area or are in a region that as yet is not covered by our current support group network, please contact Kim, join her for her first meeting, allow her to help you in your journey.  We know that for many, this is the first step, and you don’t have to be a member to attend.

See you all there – remember

“you are not alone”

 

 

 

 

 

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TNA UK National Zoom Meeting 10th February 2022

Our Association has close links with Trigeminal Neuralgia Association UK – and they have informed us that they are holding a National Zoom Meeting on February 10th 2022 and all are welcome to login in – Please see below for details UK time so please check your cities corresponding time

“I am thrilled to invite you to our next ‘National Zoom’ on 10th of  February at 7.30 pm, when I shall be joined by our very own  Professor Joanna M. Zakrzewska who will be covering the new National guidelines on diagnosis and management of TN and how TN patients can use these to ensure that they get the care proposed in this document.  Also covered is how to make the most out of your consultation, either on line or in person.
Please download a copy   – see link below

https://tna.us1.list-manage.com/track/click?u=7797a780c8eb0d6697858878e&id=8c40b6419c&e=8bef773c8a

I am pleased to announce that we shall be hosting a Mindfulness session within the National Zoom

I look forward to seeing you on zoom – please stay well as always

Anita Preem CEO”

to login please click on the blow link

Link to Zoom No Password Needed

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2022 FPA Conference – Facial Pain Association (USA)

Our association has close links to the Facial Pain Organisation in America – they are extending invitations around the globe for sufferers to register.

The 2022 FPA Conference is a two-day virtual event bringing together the worldwide facial pain community with experts who diagnose and treat people affected by facial pain

Presentations will include

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Furthering Trigeminal Neuralgia Awareness – Light It Up Teal 2022

We have started work on Lighting up Australia for 2022 to further Trigeminal Neuralgia Awareness.

We are delighted to announce Gold Coast City Council have agreed to Light up the Isle of Capri Bridge in Teal in support.

Thank you for enquiry on lighting Gold Coast assets to support International Trigeminal Neuralgia Awareness Day. I am happy to advise we can support this wonderful awareness campaign and light the Isle of Capri Bridge teal on 7th October 2022.Gold Coast City Council spokesperson

Below are pictures of the bridge lit up for an awareness campaign – it will look spectacular in Teal for the 2022 Trigeminal Neuralgia awareness campaign.

Isle of Capri Bridge – Gold Coast
Isle of Capri Bridge – Gold Coast

We aim to get buildings, bridges and homes lit up in Teal all around Australia. Please contact us if your town or city can help.

Want to make a difference in the life of someone who suffers from Trigeminal Neuralgia? Consider Membership to TNA Australia or a tax deductible donation.

Stay in touch by joining our newsletter – we’ll email a few times during the year with tips on how to best support people who suffer from Trigeminal Neuralgia.

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2021 Light Up Teal October 7th International Trigeminal Neuralgia Awareness Day

Light it up teal for Trigeminal Neuralgia 2021 - Kurilpa Bridge Brisbane

Buildings all around the world Lit up in Teal to raise awareness for sufferers of Trigeminal Neuralgia.

Our Melbourne and Gold Coast Support Groups also posed with a fabulous banner created by one of our members Matthew Puls, whose journey with TN has been extremely difficult and painful.

Light it up teal for Trigeminal Neuralgia 2021
Light it up teal for Trigeminal Neuralgia 2021

In Australia we had bridges and buildings in Brisbane and Perth lit up in Teal and they looked fantastic.

Light it up teal for Trigeminal Neuralgia 2021 - Victoria Bridge Brisbane
Victoria Bridge Brisbane
Light it up teal for Trigeminal Neuralgia 2021 - Treasury Hotel and Casino Brisbane
Treasury Hotel and Casino Brisbane
Light it up teal for Trigeminal Neuralgia 2021 - Kurilpa Bridge Brisbane
Kurilpa Bridge Brisbane
Light it up teal for Trigeminal Neuralgia 2021 - Perth Concert Hall
Perth Concert Hall

We are dedicated to raising awareness for providing support along with working with Medical and Dentistry Professionals to provide better care for all suffers.

Want to make a difference in the life of someone who suffers from Trigeminal Neuralgia? Consider Membership to TNA Australia or a tax deductible donation.

Stay in touch by joining our newsletter – we’ll email a few times during the year with tips on how to best support people who suffer from Trigeminal Neuralgia.