Tag: Awareness

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Australian Organisations Raising Awareness about Trigeminal Neuralgia

Our organisation has been a registered Charity since 2003 and next year will be our 20th Anniversary.Ā  We work tirelessly to ensure all sufferers receive support and our new website has certainly raised our profile in the digital space

In 2018 another organisation was established in Victoria founded by Skye and Peta calledĀ FightingTN

These two ladies have created an amazing community where local business support their fund raising by offering a % of profits.

All funds raised by FightingTN are directed to the brain org who utilise the funds for research.

You can buy product on their website, see upcoming events, create and register your own fundraising event too.

https://www.fightingtn.com.au/host-a-fundraiser

Every year FightingTN hosts an awareness day event for Light up in Teal

https://www.fightingtn.com.au/2022ftnevent

We are all working for the same outcomeĀ  – a cure for Trigeminal Neuralgia.

 

 

 

 

 

 

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Brisbane Support Group

The Brisbane Support Group met on December 11th and are seen here holding a banner created by Matthew Puls.

Matthew now lives on the Gold Coast but has previously lived in Melbourne and Brisbane, and attended both cities support groups.

Matthew has generously offered to help us light up Australia in Teal for International Trigeminal Neuralgia Day on October 7th

We have signed up sites in Brisbane, Gold Coast and Adelaide to date

 

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Furthering Trigeminal Neuralgia Awareness – Light It Up Teal 2022

We have started work on Lighting up Australia for 2022 to further Trigeminal Neuralgia Awareness.

We are delighted to announce Gold Coast City Council have agreed to Light up the Isle of Capri Bridge in Teal in support.

Thank you for enquiry on lighting Gold Coast assets to support International Trigeminal Neuralgia Awareness Day. I am happy to advise we can support this wonderful awareness campaign and light the Isle of Capri Bridge teal on 7th October 2022.Gold Coast City Council spokesperson

Below are pictures of the bridge lit up for an awareness campaign – it will look spectacular in Teal for the 2022 Trigeminal Neuralgia awareness campaign.

Isle of Capri Bridge – Gold Coast
Isle of Capri Bridge – Gold Coast

We aim to get buildings, bridges and homes lit up in Teal all around Australia. Please contact us if your town or city can help.

Want to make a difference in the life of someone who suffers from Trigeminal Neuralgia? Consider Membership to TNA Australia or a tax deductible donation.

Stay in touch by joining our newsletter – we’ll email a few times during the year with tips on how to best support people who suffer from Trigeminal Neuralgia.

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Coping with Pain

Strategies for Coping with Pain

Pain is a constant when you are a sufferer of Trigeminal Neuralgia. Medications can help control the pain, and treatments don’t always take all of the pain away, all of the time. Sufferers often experience pain free periods, but can suffer extreme pain anxiety while pain free, in anticipation of a reoccurrence.

Recently our Sunshine Coast Support Group Leader, Nora English, shared her experience about managing pain

We hope you enjoy the article and can apply the the process to your pain cycles. Please do consider becoming a member of our Association to gain more insights, support, understanding and to be part of our exciting new initiatives coming soon, or make a donation to fund our research programs

Thought I would share my personal experience of power of positive psychology! I recently had a tooth pulled, due to an abscess, on my TN side. I put this off for 2 years for fear of TN returning as I have been pain free since Jan 2016. Before the procedure I did meditative breathing, during the procedure I was in a meditative state in the ocean at sunrise and the dentist pulling was the ebb and flow of the ocean. I was completely relaxed and all went well. But a few days later TN returned, so I kept telling myself ā€œthe nerve is just agitated it will passā€ I felt like I was passing into migraine territory so I visited my upper cervical chiropractor. Then I visited a friend who instantly saw the pain in my face and got out her drum for sound healing. I have never tried sound healing before but it was quite extraordinary, I could feel a physical shift of energy and the TN and migraine gone. That was 4 weeks ago and I am still pain free. So yes the power of the mind and our thoughts is critical!

Stay positive”Nora English

Want to make a difference in the life of someone who suffers from Trigeminal Neuralgia? Consider Membership to TNA Australia or a tax deductible donation.

Stay in touch by joining our newsletter – we’ll email a few times during the year with tips on how to best support people who suffer from Trigeminal Neuralgia.

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Awareness for Trigeminal Neuralgia

Trigeminal neuralgia (TN) is a well-recognized cause of facial pain in the general population.

Trigeminal neuralgia affects about 5 in every 100,000 people. It is more common in women than men and usually affects people between 50 and 70 years old.

Trigeminal neuralgia (TN) is a well-recognized cause of facial pain in the general population, although it is a relatively rare condition with a lifetime prevalence of up to 0.3%.

So In Australia that equates to 75,000 people thats three quarter capacity at the MCG.

The Australian Government does not fund any research into this condition, yet up to 75,000 people are left to cope with mis-diagnosis, dental trauma from teeth being removed unnecessarily, coping with a drug regime which is debilitating, and often cannot work.

We want to change the conversation, raise awareness and provide practical help for sufferers and support for carers.

Want to make a difference in the life of someone who suffers from Trigeminal Neuralgia? Consider Membership to TNA Australia or a tax deductible donation.

Stay in touch by joining our newsletter – we’ll email a few times during the year with tips on how to best support people who suffer from Trigeminal Neuralgia.

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Member Story – Patrick & Lyn Donnelly

In April we joined the Trigeminal Neuralgia Support Group run by Peter Gough to get more information about the condition which Patrick had been diagnosed with. Patrick started having episodes of facial pain in 2017. We had decided to sell our apartment and move onto our sons property in Mudgeeraba. I had retired following open […]
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2021 Light Up Teal October 7th International Trigeminal Neuralgia Awareness Day

Light it up teal for Trigeminal Neuralgia 2021 - Kurilpa Bridge Brisbane

Buildings all around the world Lit up in Teal to raise awareness for sufferers of Trigeminal Neuralgia.

Our Melbourne and Gold Coast Support Groups also posed with a fabulous banner created by one of our members Matthew Puls, whose journey with TN has been extremely difficult and painful.

Light it up teal for Trigeminal Neuralgia 2021
Light it up teal for Trigeminal Neuralgia 2021

In Australia we had bridges and buildings in Brisbane and Perth lit up in Teal and they looked fantastic.

Light it up teal for Trigeminal Neuralgia 2021 - Victoria Bridge Brisbane
Victoria Bridge Brisbane
Light it up teal for Trigeminal Neuralgia 2021 - Treasury Hotel and Casino Brisbane
Treasury Hotel and Casino Brisbane
Light it up teal for Trigeminal Neuralgia 2021 - Kurilpa Bridge Brisbane
Kurilpa Bridge Brisbane
Light it up teal for Trigeminal Neuralgia 2021 - Perth Concert Hall
Perth Concert Hall

We are dedicated to raising awareness for providing support along with working with Medical and Dentistry Professionals to provide better care for all suffers.

Want to make a difference in the life of someone who suffers from Trigeminal Neuralgia? Consider Membership to TNA Australia or a tax deductible donation.

Stay in touch by joining our newsletter – we’ll email a few times during the year with tips on how to best support people who suffer from Trigeminal Neuralgia.