Tag: Support

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Chronic Pain Management Online Resources

The following information relates to an online chronic pain management resource which provides people living with chronic pain and their carers a structured plan, to help overcome life’s obstacles and live the best life possible.Ā  Registering for an account is free and easy.

Welcome toĀ Live Well with Pain, the largest collection of trusted self management resources for people living with persistent pain and their carers.

You have access to true stories featured in short videos.

Welcome to Ten Footsteps ā€“ and congratulations on taking the first step towards living well with pain!

Ten Footsteps for carersĀ  – If youā€™re living with someone with persistent pain, chances are youā€™re not just a partner, youā€™re a carer too.

Carer

Our resources have been developed by pain specialists and people with lived experience of persistent pain. They are designed to help you become a confident self manager of your pain, so you do more of what you want to do ā€“ and live well despite the pain.

Featured Resource Chronic Pain - Managing Setbacks

 

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President’s Reflections – Jun 2023

I canā€™t believe that two months have already passed. It has been extremely busy once again. I have been trying to gain an insight as to what my committee think is important and what isnā€™t. Their input is paramount to me as we move forward together, as an organization.

I have been providing support for members via phone, email, and Zoom Support Group Meetings. I also have been providing ongoing support for many members. This is such a rewarding experience that I thrive on and to become my best self.

My personal growth has been tremendous.Ā  As I speak to more and more people, I learn that there are no two people the same with Trigeminal Neuralgia. We are all different in pain, diagnosis, medication etc.

Being President to our small organization is certainly not about the glory. Itā€™s about working hard to provide a service to our members. Itā€™s about support, support to our members, support for each other, support for our SGLā€™s and support for the carers of people suffering from Trigeminal Neuralgia. Itā€™s about education, collaboration, and service.

On a personal note, we have just found out we are to become Great Grandparents. Such exciting news, we canā€™t wait to meet the newest addition to our crazy family. He/she will be surrounded by love and cherished forever more.

The news was so exciting I managed to fall down a flight of brick stairs, happy to report that no broken bones were had. However, an awful lot of bruises and a black eye were some of my wounds. Iā€™m happy to report that Iā€™ve made a full recovery and am fighting fit again.

I have enjoyed the past month, even though it has flown by. I sincerely hope that I have touched the peopleā€™s lives that I have spoken with, as much as they have touched mine.

ā€œIf we have hope, we have everything.ā€
I look forward to working with and providing help and Hope to so many more.
Watch this space.

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Member Story – Peter Gough

My TN Story ā€“ Peter Gough, Gold Coast support group leader Like a lot of people my story began in 2009 with a visit to the dentist. Today I am pain free. I have full dentures so the dentist thought he would have a poke around in my gums with a scalpel to see if […]
To access this post, you must purchase TNA Australia Full Member.
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Member Story – Julian Whittaker

My TN, by Julian Iā€™ve been a very active DIY kind of feller all my life, and not bothered too much by ā€™normalā€™ pain. However, my TN pain began a couple of years ago, at first coming and going, then getting gradually worse. It is ā€˜classicalā€™ TN, being excruciating, sharp, and transient on one side […]
To access this post, you must purchase TNA Australia Full Member.
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Brisbane Support Group

The Brisbane Support Group met on December 11th and are seen here holding a banner created by Matthew Puls.

Matthew now lives on the Gold Coast but has previously lived in Melbourne and Brisbane, and attended both cities support groups.

Matthew has generously offered to help us light up Australia in Teal for International Trigeminal Neuralgia Day on October 7th

We have signed up sites in Brisbane, Gold Coast and Adelaide to date

 

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Furthering Trigeminal Neuralgia Awareness – Light It Up Teal 2022

We have started work on Lighting up Australia for 2022 to further Trigeminal Neuralgia Awareness.

We are delighted to announce Gold Coast City Council have agreed to Light up the Isle of Capri Bridge in Teal in support.

Thank you for enquiry on lighting Gold Coast assets to support International Trigeminal Neuralgia Awareness Day. I am happy to advise we can support this wonderful awareness campaign and light the Isle of Capri Bridge teal on 7th October 2022.Gold Coast City Council spokesperson

Below are pictures of the bridge lit up for an awareness campaign – it will look spectacular in Teal for the 2022 Trigeminal Neuralgia awareness campaign.



Isle of Capri Bridge – Gold Coast



Isle of Capri Bridge – Gold Coast


We aim to get buildings, bridges and homes lit up in Teal all around Australia. Please contact us if your town or city can help.

Want to make a difference in the life of someone who suffers from Trigeminal Neuralgia? Consider Membership to TNA Australia or a tax deductible donation.

Stay in touch by joining our newsletter – we’ll email a few times during the year with tips on how to best support people who suffer from Trigeminal Neuralgia.

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Coping with Pain

Strategies for Coping with Pain

Pain is a constant when you are a sufferer of Trigeminal Neuralgia. Medications can help control the pain, and treatments don’t always take all of the pain away, all of the time. Sufferers often experience pain free periods, but can suffer extreme pain anxiety while pain free, in anticipation of a reoccurrence.

Recently our Sunshine Coast Support Group Leader, Nora English, shared her experience about managing pain

We hope you enjoy the article and can apply the the process to your pain cycles. Please do consider becoming a member of our Association to gain more insights, support, understanding and to be part of our exciting new initiatives coming soon, or make a donation to fund our research programs

Thought I would share my personal experience of power of positive psychology! I recently had a tooth pulled, due to an abscess, on my TN side. I put this off for 2 years for fear of TN returning as I have been pain free since Jan 2016. Before the procedure I did meditative breathing, during the procedure I was in a meditative state in the ocean at sunrise and the dentist pulling was the ebb and flow of the ocean. I was completely relaxed and all went well. But a few days later TN returned, so I kept telling myself ā€œthe nerve is just agitated it will passā€ I felt like I was passing into migraine territory so I visited my upper cervical chiropractor. Then I visited a friend who instantly saw the pain in my face and got out her drum for sound healing. I have never tried sound healing before but it was quite extraordinary, I could feel a physical shift of energy and the TN and migraine gone. That was 4 weeks ago and I am still pain free. So yes the power of the mind and our thoughts is critical!

Stay positive”Nora English

Want to make a difference in the life of someone who suffers from Trigeminal Neuralgia? Consider Membership to TNA Australia or a tax deductible donation.

Stay in touch by joining our newsletter – we’ll email a few times during the year with tips on how to best support people who suffer from Trigeminal Neuralgia.