Tag: Support

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President’s Reflections – Jun 2023

I can’t believe that two months have already passed. It has been extremely busy once again. I have been trying to gain an insight as to what my committee think is important and what isn’t. Their input is paramount to me as we move forward together, as an organization.

I have been providing support for members via phone, email, and Zoom Support Group Meetings. I also have been providing ongoing support for many members. This is such a rewarding experience that I thrive on and to become my best self.

My personal growth has been tremendous.  As I speak to more and more people, I learn that there are no two people the same with Trigeminal Neuralgia. We are all different in pain, diagnosis, medication etc.

Being President to our small organization is certainly not about the glory. It’s about working hard to provide a service to our members. It’s about support, support to our members, support for each other, support for our SGL’s and support for the carers of people suffering from Trigeminal Neuralgia. It’s about education, collaboration, and service.

On a personal note, we have just found out we are to become Great Grandparents. Such exciting news, we can’t wait to meet the newest addition to our crazy family. He/she will be surrounded by love and cherished forever more.

The news was so exciting I managed to fall down a flight of brick stairs, happy to report that no broken bones were had. However, an awful lot of bruises and a black eye were some of my wounds. I’m happy to report that I’ve made a full recovery and am fighting fit again.

I have enjoyed the past month, even though it has flown by. I sincerely hope that I have touched the people’s lives that I have spoken with, as much as they have touched mine.

“If we have hope, we have everything.”
I look forward to working with and providing help and Hope to so many more.
Watch this space.

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Member Story – Peter Gough

My TN Story – Peter Gough, Gold Coast support group leader Like a lot of people my story began in 2009 with a visit to the dentist. Today I am pain free. I have full dentures so the dentist thought he would have a poke around in my gums with a scalpel to see if […]
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Member Story – Julian Whittaker

My TN, by Julian I’ve been a very active DIY kind of feller all my life, and not bothered too much by ’normal’ pain. However, my TN pain began a couple of years ago, at first coming and going, then getting gradually worse. It is ‘classical’ TN, being excruciating, sharp, and transient on one side […]
To access this post, you must purchase TNA Australia Full Member.
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Brisbane Support Group

The Brisbane Support Group met on December 11th and are seen here holding a banner created by Matthew Puls.

Matthew now lives on the Gold Coast but has previously lived in Melbourne and Brisbane, and attended both cities support groups.

Matthew has generously offered to help us light up Australia in Teal for International Trigeminal Neuralgia Day on October 7th

We have signed up sites in Brisbane, Gold Coast and Adelaide to date

 

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Furthering Trigeminal Neuralgia Awareness – Light It Up Teal 2022

We have started work on Lighting up Australia for 2022 to further Trigeminal Neuralgia Awareness.

We are delighted to announce Gold Coast City Council have agreed to Light up the Isle of Capri Bridge in Teal in support.

Thank you for enquiry on lighting Gold Coast assets to support International Trigeminal Neuralgia Awareness Day. I am happy to advise we can support this wonderful awareness campaign and light the Isle of Capri Bridge teal on 7th October 2022.Gold Coast City Council spokesperson

Below are pictures of the bridge lit up for an awareness campaign – it will look spectacular in Teal for the 2022 Trigeminal Neuralgia awareness campaign.



Isle of Capri Bridge – Gold Coast



Isle of Capri Bridge – Gold Coast


We aim to get buildings, bridges and homes lit up in Teal all around Australia. Please contact us if your town or city can help.

Want to make a difference in the life of someone who suffers from Trigeminal Neuralgia? Consider Membership to TNA Australia or a tax deductible donation.

Stay in touch by joining our newsletter – we’ll email a few times during the year with tips on how to best support people who suffer from Trigeminal Neuralgia.

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Coping with Pain

Strategies for Coping with Pain

Pain is a constant when you are a sufferer of Trigeminal Neuralgia. Medications can help control the pain, and treatments don’t always take all of the pain away, all of the time. Sufferers often experience pain free periods, but can suffer extreme pain anxiety while pain free, in anticipation of a reoccurrence.

Recently our Sunshine Coast Support Group Leader, Nora English, shared her experience about managing pain

We hope you enjoy the article and can apply the the process to your pain cycles. Please do consider becoming a member of our Association to gain more insights, support, understanding and to be part of our exciting new initiatives coming soon, or make a donation to fund our research programs

Thought I would share my personal experience of power of positive psychology! I recently had a tooth pulled, due to an abscess, on my TN side. I put this off for 2 years for fear of TN returning as I have been pain free since Jan 2016. Before the procedure I did meditative breathing, during the procedure I was in a meditative state in the ocean at sunrise and the dentist pulling was the ebb and flow of the ocean. I was completely relaxed and all went well. But a few days later TN returned, so I kept telling myself “the nerve is just agitated it will pass” I felt like I was passing into migraine territory so I visited my upper cervical chiropractor. Then I visited a friend who instantly saw the pain in my face and got out her drum for sound healing. I have never tried sound healing before but it was quite extraordinary, I could feel a physical shift of energy and the TN and migraine gone. That was 4 weeks ago and I am still pain free. So yes the power of the mind and our thoughts is critical!

Stay positive”Nora English

Want to make a difference in the life of someone who suffers from Trigeminal Neuralgia? Consider Membership to TNA Australia or a tax deductible donation.

Stay in touch by joining our newsletter – we’ll email a few times during the year with tips on how to best support people who suffer from Trigeminal Neuralgia.

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Your donations at work for TNA Australia

Your donations at work for TNA Australia

TNA Australia Thanks YouWhen TNA Australia decided to create a new website to enable members to manage and pay for their subscriptions, we set up a PayPal Account to act as the gateway for payments.

An unexpected result of that decision was the PayPal Just Giving Donation Platform, which partners with GoFundMe, EBAY and Humble and Bundle, were able to match up donations received for our Association, and they presented us with two cheques of $1234.60 and $650.

We are so grateful to our wonderful supporters who have donated to our cause. We receive no funding from State or Federal Government, and our committee all volunteer their time to advocate for better treatment and more research for Trigeminal Neuralgia and other Facial Pain suffers and carers.

Want to make a difference in the life of someone who suffers from Trigeminal Neuralgia? Consider Membership to TNA Australia or a tax deductible donation.

Stay in touch by joining our newsletter – we’ll email a few times during the year with tips on how to best support people who suffer from Trigeminal Neuralgia.