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The Brisbane Support Group met on December 11th and are seen here holding a banner created by Matthew Puls.
Matthew now lives on the Gold Coast but has previously lived in Melbourne and Brisbane, and attended both cities support groups.
Matthew has generously offered to help us light up Australia in Teal for International Trigeminal Neuralgia Day on October 7th
We have signed up sites in Brisbane, Gold Coast and Adelaide to date
Sufferers of Trigeminal Neuralgia suffer chronic pain and very often treatment is made harder due to theĀ clinicians,Ā who treat the patient, do not always work collaboratively through the diagnostic and treatment process.
The Deloitte report is very interesting because it highlights the huge benefits from multi departmental care.
“Deloitte Access Economics was commissioned by Painaustralia to establish the local and Australia wide socioeconomic impact of pain, and to conduct a cost effectiveness analysis of health interventions that could reduce the impact of pain in Australia.
In this report, evidence has been presented to demonstrate the burden of chronic pain in Australia, including health system, productivity and carer costs, other financial costs and the loss of wellbeing.
The key findings include:
Published: April 2019″
The full report can be downloaded below – it is a long read but the index is extensive so users can hone into the areas that interest them
deloitte-au-economics-cost-pain-australia-040419.pdf
Deloitte have also provided a shorter presentation covering the key points
deloitte-au-economics-cost-pain-australia-presentation-040419.pdf
Our organisation have links with medical and dental experts around the world, all working hard to diagnose, support and treat sufferers of Trigeminal Neuralgia.
We publish our newsletter to them and they reciprocate by providing new research, articles and advice for the benefit of our members
In November we were contacted by Prof Joanna Zakrzewska, having read our September Newsletter featuring pain and patient decision making, she shared with us some research around GP and Neurosurgeon joint consultations.
The research center’s around patients satisfaction by using a collaborative model of consultation
We are delighted to publish the research and we hope you find it interesting
The papers are titled below
Trigeminal Neuralgia Guidelines 2021 V4
Provided by
Professor Joanna M. Zakrzewska MD, FDSRCS, FFDRCSI, FFPMRCA
Consultant facialĀ pain
Royal National ENT &Eastman Dental Hospitals
Floor 3,Ā 179a Tottenham Court Road,Ā London,Ā W1T 7PA
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When the Gold Coast Support Group met on Saturday 4th December for their Christmas Lunch, there was a lot of chat about the weather we had been experiencing November had been a very stormy month and the Coast had received a lot of rain.Ā Many of our members commented that the weather had really set […] 
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We have started work on Lighting up Australia for 2022 to further Trigeminal Neuralgia Awareness.
We are delighted to announce Gold Coast City Council have agreed to Light up the Isle of Capri Bridge in Teal in support.
Below are pictures of the bridge lit up for an awareness campaign – it will look spectacular in Teal for the 2022 Trigeminal Neuralgia awareness campaign.
We aim to get buildings, bridges and homes lit up in Teal all around Australia. Please contact us if your town or city can help.
Want to make a difference in the life of someone who suffers from Trigeminal Neuralgia? Consider Membership to TNA Australia or a tax deductible donation.
Stay in touch by joining our newsletter – we’ll email a few times during the year with tips on how to best support people who suffer from Trigeminal Neuralgia.
The painful attacks of trigeminal neuralgia can sometimes be brought on, or made worse, by certain triggers, so it may help to avoid these triggers if possible.
For example, if your pain is triggered by wind, it may help to wear a scarf wrapped around your face in windy weather. A transparent dome-shaped umbrella can also protect your face from the weather.
If your pain is triggered by a draught in a room, avoid sitting near open windows or the source of air conditioning.
Avoid hot, spicy or cold food or drink if these seem to trigger your pain. Using a straw to drink warm or cold drinks may also help prevent the liquid coming into contact with painful areas of your mouth.
It’s important to eat nourishing meals, so consider eating mushy foods or liquidising your meals if you’re having difficulty chewing.
Certain foods seem to trigger attacks in some people, so you may want to consider avoiding things such as caffeine, citrus fruits and bananas.
Want to make a difference in the life of someone who suffers from Trigeminal Neuralgia? Consider Membership to TNA Australia or a tax deductible donation.
Stay in touch by joining our newsletter – we’ll email a few times during the year with tips on how to best support people who suffer from Trigeminal Neuralgia.
Pain is a constant when you are a sufferer of Trigeminal Neuralgia. Medications can help control the pain, and treatments don’t always take all of the pain away, all of the time. Sufferers often experience pain free periods, but can suffer extreme pain anxiety while pain free, in anticipation of a reoccurrence.
Recently our Sunshine Coast Support Group Leader, Nora English, shared her experience about managing pain
We hope you enjoy the article and can apply the the process to your pain cycles. Please do consider becoming a member of our Association to gain more insights, support, understanding and to be part of our exciting new initiatives coming soon, or make a donation to fund our research programs
Stay positive”Nora English
Want to make a difference in the life of someone who suffers from Trigeminal Neuralgia? Consider Membership to TNA Australia or a tax deductible donation.
Stay in touch by joining our newsletter – we’ll email a few times during the year with tips on how to best support people who suffer from Trigeminal Neuralgia.
Trigeminal neuralgia affects about 5 in every 100,000 people. It is more common in women than men and usually affects people between 50 and 70 years old.
Trigeminal neuralgia (TN) is a well-recognized cause of facial pain in the general population, although it is a relatively rare condition with a lifetime prevalence of up to 0.3%.
So In Australia that equates to 75,000 people thats three quarter capacity at the MCG.
The Australian Government does not fund any research into this condition, yet up to 75,000 people are left to cope with mis-diagnosis, dental trauma from teeth being removed unnecessarily, coping with a drug regime which is debilitating, and often cannot work.
We want to change the conversation, raise awareness and provide practical help for sufferers and support for carers.
Want to make a difference in the life of someone who suffers from Trigeminal Neuralgia? Consider Membership to TNA Australia or a tax deductible donation.
Stay in touch by joining our newsletter – we’ll email a few times during the year with tips on how to best support people who suffer from Trigeminal Neuralgia.
