News

The September 2016 Newsletter has been sent to all financial members of TNA as part of their membership benefits. To get your own copy please join the association. It is only through on-going support of members can we continue to publish the newsletter. The newsletter is available in both printed and electronic versions.

The September Newsletter contains the following:

• Tributes to Frank Martin
• Head/ Facial Pain and possible causes
• Group Meetings
  • Adelaide
  • Sydney
  • Brisbane
  • Melbourne

The August 2016 Newsletter has been sent to all financial members of TNA as part of their membership benefits. To get your own copy please join the association. It is only through on-going support of members can we continue to publish the newsletter. The newsletter is available in both printed and electronic versions.

The August Newsletter contains the following:

• Overview of TN new classification and diagnostic grading for practice and research
• Minutes from recent Support Group Meetings including participants history,  experience with TN and how they handle their condition including drug regimen and other medical procedures.
  • Gold Coast Support Group – 23rd July 2016
  • Brisbane Support Group – June 11th 2016
  • Sunshine Coast Support Group – 16th July 2016
• Request for interest in re-starting the Hobart Support Group and tentative date and contact for first meeting
• Microvascular Decompression by Dr. Mark Dexter. Overview of the presentation given by Dr. Dexter at the AGM meeting held in Sydney in July. Details include:
  • History of the procedure
  • Rate of success or otherwise
  • Possible complications
  • Summary

The July 2016 Newsletter of the Trigeminal Neuralgia Association Australia has been emailed to our members.

This edition contained:

• A message urging for the continuation of the TNAA, supported by a committee President and Secretary when the current caretaker roles conclude.
• The minutes of the TNAA Annual General Meeting held on 4th June 2016 in Sydney.
• Details of a memorial donation to the TNAA.
• Report summary – TN Differential Diagnosis / Trigeminal Autonomic Cephalgias by Associate Professor Arun Aggarwal.
• A report from our Mackay, Gold Coast, Adelaide and Melbourne support group meetings. This contained a summary of the symptoms, challenges and remedies of attendees.

The Annual General Meeting of Trigeminal Neuralgia Association Australia Inc was held on 4 June 2016 at the Sydney Mechanics School of Arts – Mitchell Theatre at Level One, 280 Pitt St, Sydney.

The following members will serve on the TNAA committee for the next 12 months.

President – Irene Wood
Vice president – Kathy Meredith
Treasurer – Angelo Trovato
Secretary – Mary Milanovic
Committee Member – Suat Cheng Lee
Committee Member – John Pickup

The June 2016 Newsletter of the Trigeminal Neuralgia Association Australia has been emailed to our members.

This edition contained:

• A special message by the outgoing president of the TNAA, Irene Wood, reflecting on support the association has provided to people touched by trigeminal neuralgia.
• Details of the discounts available in the Entertainment Book, a fundraising initiative of the TNAA.
• Report summary – Bacteria, Gut Organisms Linked To Health, Autism, Schizophrenia, Depression, Diabetes, Allergies And Obesity by Xavier La Canna
• Report summary – Opening paths to novel analgesics: the role of potassium channels in chronic pain by Christoforos Tsantoulasemail, Stephen B. McMahon
• A report from our regional conference in Adelaide with summaries of the presentations:
  • Dr Tom Wilkinson – The Overlap Of Symptoms Between Trigeminal Neuralgia And TMD And How To
    Make A Differential Diagnosis.
  • Prof Paul Rolan: Clinical Pharmacologist; Consultant Physician; Medicines Developer; Pain Physician
  • Dr Andrew Zacest: Neurosurgeon – Surgical Option Of Trigeminal Neuralgia
  • Dr Michael Conlon: Senior Research Scientist, CSIRO Food & Nutrition – Gut Microbes and Human Health: How Your Diet Affects Your Microbes
• A report from our Sydney support group meeting. This contained a summary of the symptoms, challenges and remedies of attendees.

The Trigeminal Neuralgia Association of Australia is fundraising with the Entertainment Book in 2016.

The Entertainment Book comes with the Gold Card and vouchers, and contains over $20,000 worth of valuable ‘up to 50% off’ and ‘2-for-1’ offers for many of the best restaurants, cafés, arts, attractions, hotels, travel, shopping and much more.

Alternatively, The Entertainment Digital Membership puts the same value into your Apple or Android device, allowing you to conveniently search for special offers.

Editions are available for each Australian capital city and many regional areas.

The Book and Digital Memberships are on sale now at https://www.entertainmentbook.com.au/orderbooks/9s26962, ready to use from April, 2016.

20% of each membership sold directly supports our efforts to advocate for TN patients and empower our members with information and support.

Thank you for your support.

The May 2016 Newsletter of the Trigeminal Neuralgia Association Australia has been emailed to our members.

This edition contained:

• The obituary published in the New York Times, reflecting on the life of Dr. Peter J. Jannetta, Pioneering Neurosurgeon on Facial Pain, dying at 84.
• Details of our AGM and Regional Conference on 4 June in Sydney.
• The nomination form for TNAA executive committee positions.
• Details of our fundraising initiative with Entertainment Books.
• Report summary – Nonparalytic botulinum molecules for the  control of pain by Mangione, Antonina S.; Obara, Ilona;  Maiarú, Maria; Geranton, Sandrine M.; Tassorelli, Cristina;  Ferrari, Enrico; Leese, Charlotte; Davletov, Bazbek; Hunt,  Stephen P..
• Details of the most common side effects of Lyrica.
• Reports from our Brisbane, Sydney CBD and Melbourne support group meetings. These contain summaries of the symptoms, challenges and remedies of attendees.
• Details of our Adelaide Regional Conference on 21 May 2016.

The April 2016 Newsletter of the Trigeminal Neuralgia Association Australia has been emailed to our members.

This edition contained:

• Irene Wood’s resignation letter from the role of President of the Trigeminal Neuralgia Association Australia.
• Details of our fundraising initiative with Entertainment Books.
• Report summary – Diet affects autoinflammatory disease via gut microbes.Trigeminal Neuralgia surgery by Kim J. Burchiel.
• Report summary – pain management for the elderly by the World Health Organisation.
• Reports from our Mackay, Gold Coast, Adelaide, Toongabbie, Sunshine Coast. These contain summaries of the symptoms, challenges and remedies of attendees.
• The registration form for the regional conference on 21 May in Adelaide.

The March 2016 Newsletter of the Trigeminal Neuralgia Association Australia has been emailed and/or posted to our members.

This edition contained:

• Information about our upcoming conference in Adelaide.
• Report summary – Trigeminal Neuralgia surgery by Kim J. Burchiel.
• Report summary – pain management for the elderly by the World Health Organisation.
• Reports from our Melbourne, Toongabbie, Brisbane and  Sydney CBD support group meetings. These contain summaries of the symptoms, challenges and remedies of attendees.

The February 2016 Newsletter of the Trigeminal Neuralgia Association Australia has been emailed and/or posted to our members.

This edition contained:

• Information about our Facebook page at http://on.fb.me/1lQfHZc
• Report summary – Comparison of Tolerability and Adverse Symptoms In Oxcarbazepine And Carbamazepine In The Treatment of Trigeminal Neuralgia and Neuralgiform Headaches Using The Liverpool Adverse Events Profile (AEP)
• Report summary – Carbamazepine and Folic Acid In  Trigeminal Neuralgia Patients
• Our postal address has changed to PO Box 157, North Richmond NSW 2754, Australia.
• Reports from our Sunshine Coast, Mackay, Sydney CBD, Adelaide, Gold Coast, Brisbane and Melbourne support group meetings. These contain summaries of the symptoms, challenges and remedies of attendees.