Posted on Leave a comment

President’s Reflections – Jun 2023

I can’t believe that two months have already passed. It has been extremely busy once again. I have been trying to gain an insight as to what my committee think is important and what isn’t. Their input is paramount to me as we move forward together, as an organization.

I have been providing support for members via phone, email, and Zoom Support Group Meetings. I also have been providing ongoing support for many members. This is such a rewarding experience that I thrive on and to become my best self.

My personal growth has been tremendous.  As I speak to more and more people, I learn that there are no two people the same with Trigeminal Neuralgia. We are all different in pain, diagnosis, medication etc.

Being President to our small organization is certainly not about the glory. It’s about working hard to provide a service to our members. It’s about support, support to our members, support for each other, support for our SGL’s and support for the carers of people suffering from Trigeminal Neuralgia. It’s about education, collaboration, and service.

On a personal note, we have just found out we are to become Great Grandparents. Such exciting news, we can’t wait to meet the newest addition to our crazy family. He/she will be surrounded by love and cherished forever more.

The news was so exciting I managed to fall down a flight of brick stairs, happy to report that no broken bones were had. However, an awful lot of bruises and a black eye were some of my wounds. I’m happy to report that I’ve made a full recovery and am fighting fit again.

I have enjoyed the past month, even though it has flown by. I sincerely hope that I have touched the people’s lives that I have spoken with, as much as they have touched mine.

“If we have hope, we have everything.”
I look forward to working with and providing help and Hope to so many more.
Watch this space.

Posted on Leave a comment

President’s Reflections – May 2023   

The last month since being elected as President has been extreme, to say the least. I’m amazed at how much work there is to be done. I’m also amazed at how much work others do to help our organisation. It’s been a little bit frantic and sometimes overwhelming however, it’s been rewarding. I have learnt to self-manage rather swiftly whilst maintaining a balance between family commitments and maintaining a work relationship between the two passions in my life. Family and Trigeminal Neuralgia with a lot of self-care along the way. 

I’m also excited to say that I undertook a rather documented role with my Droctor.   I am receiving a treatment called Low level Light Therapy, which hasn’t been documented for Trigeminal Neuralgia and so I became the specimen in my Dr’s. journey, and mine I might add. 

 I can say that after two treatments of LLLT I am pain free. Something I never thought was possible however, clinging tightly onto HOPE, I appear to be getting relief from my pain.

This is something that my Doctor and I embarked upon, each making documented journal entries along the way. 

This may be something that we’ve touched upon that others don’t know yet. This has been one of the most rewarding months. This illness has made me humble; it’s shown me what IS important in life. My family deserves a medal for being by my side every step of the way. 

“If we have hope, we have everything.” 

I look forward to working with and providing help and Hope to so many more. 

Watch this space. 

~Kim~ 

further information on low light therapy can be found here